Previously & Currently Supported Research Projects & programs

The University of Michigan’s Save A Heart Program provides the most advanced care for infants, children, and adolescents with all forms of heart disease and adults born with congenital heart defects. We aim to lead the way in improving the quality of life for patients with heart defects by:

• Creating systems that allow congenital heart survivors to thrive

• Connecting heart centers across the country to enhance standards of care

• Enabling more research and faster discoveries

• Providing personalized medicine

• Developing innovative devices and therapies

AMHF donated $9,611.98 towards their program, earmarked for single ventricle research.

With our May 2023 event, all funds raised will be given to the CHERISH program! CHERISH is a designated Spectrum Health Foundation (Now Corewell Health) fund that supports research, education, and innovation initiatives for children and adults with congenital heart disease, resulting in several presentations at scientific meetings and publications in peer-reviewed medical journals.

Our donation will be earmarked for their study going on using advanced technology. Dr. Haw states, “The device in the cath lab allows an older single ventricle patient to exercise during invasive pressure monitoring. This investigation can only be done in two places in the USA as I know it. The information gained from this investigation will enable us to differentiate different problems within the Fontan circulation and, more precisely, treat patients. We have some preliminary data.”

 

Total to-date Donated to research: $23,981.09

Partner with us!

We are looking for promising single-ventricle research projects to partner with! If your entity is interested in partnering with us, please email us at: Arlosmediocreheartsfoundation@gmail.com.

With the subject: Single Ventricle Research Project Partner Request

AMHF recognizes that health disparities based on race, ethnicity, and gender exist in all areas of healthcare. Research has confirmed that certain racial and ethnic groups have worse outcomes for patients with congenital heart disease. Among researchers, underrepresented minorities face additional challenges in obtaining research funding. We strongly encourage applications from underrepresented minority investigators and applications that focus on investigating disparities in patients with congenital heart disease.

Arlo’s Mediocre Hearts Foundation awards are intended to fund research that directly impacts patients living with single ventricle hearts throughout their lifetime. We seek to support investigations in clinical cardiology, including surgical and interventional techniques, translational research, and population science. Our ultimate goal is to fund the most promising research to advance the diagnosis, treatment, and prevention of single ventricle conditions(CHDs).

The focus areas for single ventricle research include but are not limited to:

  • Genetics

  • Maternal environment and modifiable disease impact on fetuses with single ventricle conditions

  • Fetal Diagnosis and intervention

  • Pharmacology

  • Devices and procedural research (cardiac catheterization and cardiac surgery)

  • Neurodevelopmental and functional outcomes

  • Life-long care of adults with single ventricle conditions

  • Technological development and advancements

  • Quality improvement

  • Policy regarding the delivery of care, coverage, and access

  • Health Disparities